Monday, September 30, 2013

Back to School!!!!!

     Hey everybody!  School started (hence the delay in August blog posting!)  Time to clean up the workspace for homework, dig out that backpack, make new friends, meet new teachers, and learn new things.  I know, everyone thinks I am crazy for loving school.  I am more enthusiastic about this new school year than most.  Maybe a little too enthusiastic...
     This year I am taking three AP classes and an Honors class in addition to Latin III, Pre-Calculus and Orchestra.  (I know, “What was I thinking?!!”)  I am optimistically hopeful that this year will go well.  Of course, even though I love school, it is so very, very hard, because I catch only about 60% of what teachers say and 40% of what students say every day.  With the FM microphone, I can catch infinitely more than I could with hearing aids alone, but it is not always enough.  It’s also not something I use with my friends during social situations, although maybe I should experiment with having them use it during down times.  Hmm…. Maybe I should try it in the cafeteria some time.  Now that I have thought of it, I think I will!
     In order to catch and understand everything that most everyone else hears naturally, I use a variety of techniques that I have learned over the years, which include not only the FM microphone, but classroom positions, schedules, notes, etc.  My techniques are listed in Table 1, along with pros and cons.  Everything is included in my IEP, and we talk to new teachers at the beginning of each school year about these techniques, some of which can be used to help others even if they don't have a hearing loss.  I’ve started to email these techniques, along with an audiogram showing my hearing loss that exists even with the hearing aids, the “Instructional Accommodations or Modifications” page of my IEP, and a short summary explaining my audiogram and accommodations to my future teachers in advance of the school year so they can think about how to provide the best access to the material and communications for me.  Last year a teacher rearranged the classroom for group discussions so I could read everyone’s lips.
     With all of these techniques and accommodations, I am able to understand more.  However, there are still some additional things that I could use to access communication, but for a variety of reasons I choose not to use them at this time, and they are listed in Table 2.  On the other hand these methods could work for you.  Keep in mind, that these techniques may or may not work depending on the circumstances and your preferences.  I hope that you or someone else you know can use some of these techniques to help not only in school, but with life in general.  I would love to hear what other accommodations you have found work for you, so I might try them and I can add them to the list for others to share. 

Table 1:  Techniques I use:

Technique
Pros
Cons
Other factors
FM Microphone
Small, direct feed to my hearing aids by wearer, either teacher or other students
Need to remember to charge, has to be turned on and off appropriately, overrides hearing aid microphones, sometimes static-y
My current microphone is not a true FM system anymore, but a streaming Bluetooth microphone
Preferential Seating
Enables me to lip-read, keeps me away from excess background noise
Can get tricky with group discussions
Need to consider if teacher is right handed or left handed when selecting seat
Note-taking help
Since you can’t lip read and write at the same time, teacher’s check my notes or provide a copy of notes to make sure I catch everything
I have to remember to check in with the teacher, which can be time-consuming
I could ask for a “Note-taker” but so far I'm managing on my own with teachers' help
Close Captioning for films
I have access to what the movie is communicating, helps other students too!
It can be tricky with old equipment or old videos, especially VHS tapes
With movies that are too old to have CC, my teachers have looked for a film synopsis or transcript to give me.  Be sure classroom has a newer TV
Minimize Group Projects or Number in a Group
Very difficult for me to communicate with more than one person at a time, so this makes it easier for me to participate
Sometimes it just isn’t possible due to lab equipment availability
I need to advocate for myself with group partners more
Extended time for Testing

Provides extra time to match grammatical endings
No cons come to mind about this one
I have a high-frequency hearing loss and don’t hear the “s” “ed” and other sounds that define speech, even with my hearing aids
Extended time for Homework
(*I only use this once or twice a year)
Listening to people speak all day is exhausting, so sometimes I’m wiped out at the end of the day.  It gives me a chance to recover
If I don’t turn in my homework on time, it only delays the inevitable and creates a backlog of work
I work very hard to keep up with my peers



Table 2:  Techniques I do not use at this time:
Technique
Pros
Reason I’m not using
ASL Interpreters
Have real time visual communication
I’m not fluent in ASL
CART Interpretation
Have visual communication, with slight time delay
Technology is newer, and I’m managing on my own right now with the microphone alone
Cued Speech Interpreters
Helps with the grammatical endings I don’t hear
Not common in NM, would be difficult to find Interpreter and I’m not fluent in Cued Speech



Saturday, August 31, 2013

The Grocery List

     Sorry for the belated August blog posting.  School ... ya know?  
     I am going to tell you a funny story that had happened to me recently.  You might have had a similar experience at some point:



The Grocery List
     Dad picked you up from cross country practice and the two of you are on the way home.  You always call Mom to let her know you and Dad were on the way home, but mostly to find out what was for dinner and to decide if it was acceptable.  If the announced meal plan was not acceptable, then you and Dad swing by the grocery to buy food for a “good” dinner (“good” as determined by you and dad, i.e. no broccoli and more ice cream!)  So, on this day, you call Mom and you ask "What's for dinner?"
     Mom replies, "Pizza, but we are missing some ingredients."  Mom listed the ingredients that were needed for pizza, you are able to catch all of it, because you have helped make a lot of pizza and know the ingredients necessary for pizza.  But then, Mom told you there were some other items needed.
     Mom lists the first item.  It flew right over your head.  You ask her to repeat it.  She did.  From the sounds you could hear, you hazard a guess.
     "Silk?" you asked.
     Dad, who is driving, started laughing (not at you though), "No silk on the pizza!"  He was the master chef of pizza.
     Mom replied no, and she repeated the word again.
     "Oap?" you asked again, clueless.
     At this point, Dad laughed and listened in the phone conversation to help you.
     Third time really is a charm.  "Soap."
     Dad laughed again, "No soap on the pizza!"
     Now you figured out one item, you listened for the next.  Once again, it flew over your head.
     "Ba-Ba-Bar?"  You burst out laughing.  That could not be it.  Mom is hard-of-hearing, too, and this time she was confused also.
     You try again to figure out the word with Mom.  Mom repeated the sounds; you hazard another guess.
     "Garlic chives?" you asked.
     Dad looks puzzled.  Mom replied “no” again and repeated the words.
     Once again, third time is a charm.  "Oh! Garbage bags!"
     Dad laughed
     Mom said yes.  Now that you had the complete list, it was time to go off to the grocery.


     Afterward, Mom and I talked about this little miscommunication.  We were actually surprised that the cellular conversation was not more confusing; we came up with a list of words that we could have confused with garbage bags, words that were about three syllables long, that could be found in a grocery, that begin with a 'g' or a 'b', and that end in an ‘s’.  It was a sizable list: garbonzo beans, green snow peas, grocery bags, buffalo wings.  If that happened again, Mom and I decided, we would just text each other the list or word.

Tuesday, July 30, 2013

Medical Masks

     Hospital visits are hard, especially if you came down with a really bad case of pneumonia.  In November of 2012, I came down with a fever.  At first, my family and I thought it was a cold, but when my fever reached 102, we went to the emergency room.  Then it appeared to be strep throat, but I wasn’t getting better with antibiotics.  It took about three trips to the doctor and some additional tests done before everyone found out that I had pneumonia.  I went straight from the doctor to the local hospital, but the journey did not stop there.  After two days in the local hospital, I was still getting worse, and then I was transferred to a large hospital in Albuquerque.
     Of course, pneumonia is contagious, and doctors and other people should take precautions when it is really bad.  In my case no one knew how bad it was until I moved to the second hospital.  At the second hospital, everyone had to wear masks, gowns, gloves, the entire deal.  I depend on lip-reading, and the surgical masks took that ability away; also, my ears were filled with fluid from an infection.  To top that, the doctors were baffled as to how I got pneumonia and how to treat it specifically, and so they were asking me a lot of questions.  Hello!  I am not hearing that well!
     We tried multiples approaches to this situation.  One of my parents always stayed with me, but they had to wear masks, too.  (My parents did the same thing for my grandfather when he was in the hospital, although they didn’t have to wear the mask with him, and he was hard of hearing, too*.)  My parents knew my medical history and had a general idea of my daily schedule, so they could answer basic questions and let the doctors know I am hard of hearing.  There were some limits to this solution though.  I was getting bombarded with some weird questions that they couldn’t answer, i.e. have you been around any birds for extended period of time.
     However, both the doctors and my parents have found a way around the mask rule.  The mask rule only applied to around the bed and there was an area marked off where, people could stand without the mask.  With this simple solution, I could read lips and understand questions.  We also used some ASL finger spelling and the few words in sign we knew.
     Masks not only affect hospital visits, but also trips to the dentist.  I found the best way to handle masks is for the doctor or nurse to go through what they are going to do first and then put on their masks.   Another option is to ask them not to wear the mask when they’re talking or working on you.  If you know ASL, you could use an interpreter.  Or if you have a really contagious disease or something similar, they could use a computer or notepad and write stuff down.
     My mom and I thought it would be great if there was a clear, see-through medical mask.  Maybe that’ll be a science fair project some day. 


* His hearing loss was most likely caused by environmental conditions in the Army rather than having it since birth as he became hard of hearing at 40.

Sunday, June 30, 2013

Dive in!!!

     The phrase "dive in" applies to everybody.  I do not mean dive into the pool (although you can do that; if you do, I dare you to try the high dive); what I do mean is to try new things.  Trying new things is perfect for summer or at the beginning of a new school year.
     However, if you are hard-of-hearing, like me, you might be a little more afraid than most people are about trying new things.  The best advice I can give to someone who is afraid to dive in is to just do it and try to anticipate problems ahead of time.
     The first thing to do when you are diving is to figure out where to dive!  I am not going to tell you where to dive in though, just give you some ideas: camps, summer programs, clubs, church groups, sports, etc.  You can pick any one of those categories and find something you like or you can go off on your own tangent.  It is completely up to you, although your parents might have some say in it.  Once you have found what you would like to dive into, it is time to anticipate problems.
     What do I mean by problems?  Problems might be situations such as the instructor not knowing how to use the microphone, people not knowing to face you, or the possibility of your hearing aids getting wet.  In order to find potential problems with hearing aids, you need to ask yourself questions: Is there going to be water involve?  Is this a camp where the counselors are trained with hearing aids or deaf students?  Is it a deaf and hard-of-hearing camp or not?  Is it a camp with lots of activities or a one-hour session per day?  There are lots of question to ask yourself, and lots of problems to consider. Now comes the fun part: solutions!
     For every problem, there is usually a solution.  Here is a step-by-step guide of how I solve the majority of problems that I run into.  First, I collect the following information into a file:
  • A one-page summary, "Instructional Accommodations or Modifications," from my IEP (no one is going to read a twenty page IEP or 504 plan),
  • A speech bananagram with the limits of my hearing, both with and without your hearing aids, on it (I call it a bananagram for short, the full name is "speech banana audiogram").  When I'm meeting with someone, I EMPHASIZE that the chart is based on the results in a sound booth with no sounds or distractions which is usually the complete opposite of a classroom or a camp,
  • A short paragraph interpreting the bananagram, as some people cannot think in terms of decibels and frequencies,
  • A list of suggestions to accommodate me for activities such as "don't get the hearing aids wet," "rephrase instructions," and "face the individual with hearing aids."  My audiologist gave me advice on this list.

     Second, I send an e-mail to my instructor or counselor, with everything above attached, explaining that I need help to accommodate me with my hearing loss.  Third, I meet with my instructor, counselor, and/or nurse and talk with them.  At this meeting, I show them how to use my equipment, answer any questions they might have after looking over the e-mailed files, and bond!  Lastly, but not least, have fun when you get there.
     Yes, you're still going to run into problems, hopefully nothing more serious than a paper-cut from all these documents, but anticipating problems, and solving some of them ahead of time, will make communication easier for everybody.  My parting words are...

     Have fun!  Summer's going by fast!!!  Try something new!  Dive in!!!